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Emanuele non è l’unico in Ticino. Come lui c’è anche suo fratello. Sono i soli a cui è stata diagnosticata l’omocistinuria, una malattia genetica del metabolismo. Insieme alla mamma affrontano con coraggio una vita piena di sfide. L’ultima li sta però scoraggiando.
Fino a 20 anni tutto bene, ai costosi medicamenti di Emanuele ci pensava l’AI. Poi per legge è passato al sistema LaMal e la sua cassa malati considera il farmaco che gli garantisce la sopravvivenza un integratore alimentare.
Laura Giovara
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RSI New Articles 19.09.2014, 17:16
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